Wisbech store director, Mike Avery, has participated in a gruelling 54 mile trek to raise funds on behalf of his niece who suffers from a rare genetic disorder.
Challenge for change
Mike took part in the Caledonian Challenge along with four other members of his family on June 11 and 12. The event saw them tackle the mountainous challenge in 24 hours across the Scottish highlands in aid of the XP Support Group.
XP is a rare hereditary condition that prevents skin repairing DNA after damage from UV rays. This results in extreme sensitivity to sunlight, and a tendency to develop eye and multiple skin cancers.
The team consisted of family members and friends. Calum Brewster, Lucas Avery, Andrew Gourlay and Daniel Avery competed with Mike, whilst Fraser and Zoe Crawford aided the team along the way.
Mike says: ‘We raised an incredible £2,487 for a cause close to our hearts. I’m so proud of my family for getting involved and the Wisbech Specsavers team for their generous donations and kind words. We’re a step closer to giving Hazel and others with her condition a life without boundaries.
‘Her condition can isolate her from a normal childhood and the ability to do the things that others her age can. Anything we can do to make her life easier or see her smile is a victory.’
Vital research and support
The XP Support group, entirely run by volunteers, aims to help the individuals who suffer with the condition by providing support to both them and their families. The group raises funds for research and vital equipment to protect those with the condition, which currently has no cure.
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