The team at Specsavers in Ashton has worked hard in the run up to the first ever Williams Syndrome Awareness Day on Friday 15th May, which they have planned to mark with a special event in store.
Three year old Esme who has Williams Syndrome
There are an estimated 3,500 people in the UK with Williams Syndrome, including three year old Esme Hart, optical dispenser Emily Jones’ daughter.
Plans for the in-store awareness day, organised by Emily with the help of the team at Specsavers Ashton, include an information zone where customers can talk to Emily, collect leaflets and information, and find out more about the rare disorder.
Three year old Esme will be in store enjoying the day, and there will also be a bake sale and fundraising for the Williams Syndrome Foundation.
About the disorder
Williams Syndrome is a rare disorder similar to Down’s Syndrome, which occurs at random, caused by an error on chromosome 7 (at the elastin gene focus).
WS causes distinctive facial characteristics and a wide range of learning disabilities. One of the most noticeable characteristics of people with WS is that they love to talk, and are extremely friendly, which is why the Williams Syndrome Foundation has launched a #sayhello campaign and its first ever awareness day.
The team hopes that customers will come along to the event, learn more about Williams Syndrome, meet Esme and enjoy the cakes, all in aid of a wonderful cause.
More information about the #sayhello campaign.